How should one feel about living life after cancer? Do we appreciate the fruitsof life even more, savoring every moment, tasting every new experience? Or do we cower away in angst, afraid of every bump, every bruise we get along the way? The fact of the matter is that you can figure out how to be a cancer patient: you can read books on your different treatments and what side-effects to expect; you can shave your head in preparation of losing your hair or pierce your nipple to spite losing your breast. You can listen to others tell you how to listen to your body and mind the fatigue, and you can learn to walk again after losing a leg.
What they didn't tell us is what to do when it's all done. They didn't tell us about the after effects of being a cancer patient, much less a young adult cancer patient. They didn't tell us how cope with not being able to keep up with our friends. They didn't tell us how to prepare for subsequent check-up scans that throw us right back into the cancer experience. And they certainly didn't tell us how to face the myriad of life experiences we have ahead of us with the new eyes of "cancer survivor", which as young adults we have many. And just in life's true form, those experiences speed at you just when you least expect it, even though some of us (including myself) think we have the ability to plan for and evaluate those experiences.
So, imagine my surprise when my body started speaking to me, and boy was it sending me some weird messages. Imagine while going through the preparation of getting another check-up scan, reminding me that yes I was still a cancer survivor, they ask that begging question they ask all women of child-bearing age...and then it hit me. Wow, I thought, could it be? Perhaps I should back up a little...
For as long as I can remember, all I've really truly wanted to be is a mom. Just the thought of creating a life and watching it grow...shaping him, molder her, helping my little wee one grow up to be the person they're destined to become, and watching the process all over again as they birth and raise their own children. I never thought in a million years that my ability to live the human dream of raising offspring would ever be in question. So, when the day came that I heard those three fateful words, the fact that my fertility would possibly be in question didn't immediately come to mind. But, when it did, I was crushed. I asked for time to think about what I was going to do...and I made the choice then to let nature take its course. I didn't want to go through 3-6 weeks of hormone therapy, just to have my ovaries invaded by big needle. I didn't want my husband John to have to spooge in a cup in a cold room, or our offspring floating in a petree dish for a few days before finally being turned into an ice-pop to sit around and wait for me to escape with my life. I felt that I would be no good to my frozen popsicle embryos if my vagina wasn't around for them to be inserted into.
When I started my treatment, my oncologist had informed me that the estrogen in the birth control pill I'd been on for over ten years would interfere with my chemo. I went to my then gynocologist who first suggested an IUD,which, after reading the pamphlet HE gave me, read that an IUD "shouldn't be used by immuno compromised patients"...HELLO!!!! What does chemo do? Thankfully one of his nurses suggested the DepoProvera shot. And, even though I had heard nothing but horror stories about the shot, after talking it over with my oncologist we decided it would be the best choice. I had been on the shot through my cancer treatment, and had stayed on it afterwards just for the convienence of it. Besides, not getting a period was cool (sorry guys if you can't relate.)
During the time after my treatment, I went through the anxiety and depression that I think many of us young adult survivors go through. Especially when scans would come up, I would go through this really down cancer funk. I found myself fearing every new experience, every question of what would be. I hated that I had become someone who was afraid of life. I used to be a person who loved life, who was excited about everything I had ahead of me, and here I was staying up at night constantly worrying about every little thing that could go wrong, and forgetting that there's a whole lot that could go right. So, when my November 2007 scan came, I decided that I'd had enough.
I sat down with John and asked how he felt about what life we had to come. Specifically, I asked him when he thought we'd be ready to be parents. John told me that he had been thinking about that himself lately, and wondering when that time would come. I told him that I was tired of having nothing to look forward to besides a scan that tells me wether I'd continue being a cancer survivor, or be thrown back into the world of cancer patient; I needed something more positive to look forward to. We made the decision that if the scan came back clean, that we would go off birth control and again trust nature to take its course. Deep down I hoped that nature would be kind. After all, we were praised for not taking more proactive measures with our fertility, praised that we were trusting God. Now, I don't know that everything happens for a reason; I don't know if it's God who decides who's a mom or who isn't. What I do know, and knew then, is that the world works in mysterious ways. I knew that if I was meant to be a mom, I would be. If I was meant to bring my own offspring into the world, I would. And if I was meant to take a child without a home, or a child needing a better start into my heart, then I will. That is not to say that I won't do everything in my power to feel the joys and pains of birthing my own biological child. I will do everything in my power to produce a namesake for my husband.
With that said, it was off to the gynecologist once again (a new one this time after the IUD incident) to discuss going off the shot. She was very straight forward with me that it takes many women a long time to begin cycling again after the depo shot. She told me that it could be anywhere between 6 to 18 months before I would even start ovulating again. And with my history, we both thought it was a strong possibility that it would take me more towards the longer end. But still, it felt good to once again be on the journey of life, opening myself up to wherever it would take me. So, imagine my surprise when toward the end of February 2008 I started spotting. It was nothing exciting, not even panty liner worthy, but it was something more recognizable of that little red friend who had been there since I was 9, and had abruptly disappeared when I got my cancer patient badge. I diligently marked the date in my calendar, February 26, 2008, and awaited for that time to come the next month to be sure that I was really becomming a normal woman again.
So, now we're back to present. My date had come, and I had become aware that my breasts had been extremely tender for a few weeks now, that I had been cramping lightly but had become a little more intense. I found myself running to the bathroom, tampon in hand, on more than one occasion just to find a clear tissue. I had been urinating more frequently, and was tired all the time. And then, another scan came up again, and during the pre-screening they asked the question, "is there any possibility that you could be pregnant?" I told them that I wasn't on any birth control and wasn't doing anything to prevent it from happening, so they agreed that we should do a test before the scan.
But over that night, I couldn't help but think, could it be? My gynocologist had also told me that some women immediately get pregnant after coming off depo and never get a period back. I didn't think I'd be so lucky, after all I also had my endometriosis to contend with on top of the chemo and the depo shot itself. But, my mind was still reeling, and true to my controlling self, I decided to pick up a pregnancy test when I was grocery shopping that next afternoon.
I came home, went and peed on the stick, and continued to unload groceries. When I was finished, I returned to the bathroom, and....
THERE IS NO F%CKING WAY!
I grabbed the test and ran into the kitchen where there was better light. It looked like a line...a faded line, but a line nontheless. I was still in disbelief. I called my girlfriend who is currently pregnant with her second. "Can you come over here and look at this," I asked, "you have more experience with this than I do." I brought the test to her house, "yep, that's a line." I was shocked, I was breathless. I had gotten a two-pack of tests, and still doubting the line, I decided to take the other test first thing in the morning. There was no question about that one...I'M PREGNANT!
I couldnt' believe it...I still can't. Even as I sit here writing this, waiting to leave for my very first baby-mamma appointment, there that little voice in the back of my mind nagging me that maybe the test was wrong, maybe this is just another bad medical thing causing a positive result. I think that's the fear of cancer survivor talking, but yet deep down I know that it's true. I'm going to be a mom!
I have looked, yet again, for information on how to be a cancer survivor mom. So far, I've found nothing. Not even a website dedicated to women who get diagnosed with cancer while pregnant hasn't give me any information on how to do this. How does one be a mom and a cancer survivor? How does one cope with the fear of the cancer coming back, or the fear of the remaining side-effects combined with the fear of being responsible for another's life? So, I've decided to share my journey with all of you. I will chronicle my pregnancy and my post-partum days in hopes that other men and women going through this will know that they are not alone, and to let those who have these days yet to come know that there is still hope...